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This is MeAbout
I have worked for 18 years with patient organizations in rare and prevalent disease and continue to work globally . I have been on the Board of the Alpha-1 Foundation, Florida USA as well as working on global strategy for COPD Foundation, USA. We are specifically working on patient empowerment: developing resources and spaces in our Happyair initiative, for better understanding of digital health, self-management in integrated care ; training + engagement with healthcare professionals on the patient journey
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